Which of the following examples of using the internet to conduct research meets the federal definition of research with human subjects?

Question: Which of the following examples of using the internet to conduct research meets the federal definition of research with human subjects?

Of the following examples of using the internet to conduct research, conducting an online focus group with cancer survivors to determine familial support systems meets the federal definition of research with human subjects.

The federal definition of research with human subjects is as follows:

A systematic investigation, including research development, testing and evaluation, designed to develop or contribute to generalizable knowledge. Involving living individual about whom an investigator (whether professional or student) conducting research obtains (1) data through intervention or interaction with the individual, or (2) identifiable private information.

The online focus group with cancer survivors meets all of the criteria for research with human subjects:

• It is a systematic investigation designed to develop or contribute to generalizable knowledge about familial support systems.
• It involves living individuals (cancer survivors) about whom the researcher will obtain data through interaction (the focus group).

The other examples do not meet the definition of research with human subjects:

• Analyzing a website visitor report from several pro-anorexia blogs to determine the popularity of each blog does not involve interaction with the individuals who visited the blogs.
• Gathering data to supplement an oral history project about a local civil rights activist does not involve interaction with the activist or any other living individuals.

It is important to note that the federal definition of research with human subjects applies to all research conducted in the United States, including research conducted online. Researchers who are planning to conduct research with human subjects must obtain approval from an Institutional Review Board (IRB) before beginning their research.

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